Parents of children with disability are on a learning path


Reflecting on my experience in the disability sector, I am struck by the size of the task ahead.

We have entrusted professionals with the authority and the belief that their expertise carries more weight than that of other stakeholder groups - such as people with disability and their families. This has coloured their relationships with these families in ways that we have lost control over. Most importantly, this has resulted in families' journeys being over-pathologised.

Working from a family-centered perspective, we listened to parents who told us how their encounters with professionals could be improved. The key to such transformation lies in re-framing families journeys as learning paths. Listen to Ellie below who explains how she traveled on this journey. A decade ago, she had to find her own way - nowadays we can facilitate learning experiences to help others along these paths.